Update :) Chips!

We’ve been very fortunate to go on a trip recently to celebrate Mr Danger’s surgery and the mammoth year we had as a family. We had some great news earlier in the year from Danger’s doctor to say that he was all clear of his seizures! Shortly after, we started to notice some changes in […]

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Under Pressure – just like Freddy.

We ALL have pressures.  Every single one of us.  Our circumstances vary but we are all under ridiculous amounts of pressure. To make money, to keep money, to buy food, to make food.  To keep on top of this, to keep on top of that.  To stay fit, to not be fat.  To be energised […]

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February Post for Rare Disease Day!

This week we received the long-awaited news at Mikey Danger’s hemispherectomy post-op check-up – 7 months to the day, that we’ve been longing to here….. You no longer need to see me –  come again in 12 months! These were the words from our neurologist who we have been in a close relationship with for […]

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A post about 2 cents worth!

Many people have commented over the years with regard to my parenting style of my son with his array of special needs.  I’ve had well meaning people tell me that I am ‘too soft’, am ‘over-protective’ and a specialist once questioned whether I was a ‘lazy parent’!  I’ve had people tell me ‘he will be […]

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A different kind of Christmas!

We are about to experience a different kind of Christmas this year – our first Christmas without seizures! It’s been about 5 years since when looming up to Christmas I haven’t been full of anxiety with the anticipation on whether our little Danger would be having a hospital trip, recovering from a cluster of seizures […]

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The Wonder of Wonder!

I finally watched the movie ‘Wonder’ the other day with my mum. I just loved it and in so many ways, I feel this movie really got it right. It was an insight into a family’s life of living with a rare condition and with the associated issues that this kind of life brings. For […]

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