The internet can be a great place, it’s where families connect, friendships reconnect and friendships are formed. It’s where parents of children who have rare syndromes and disabilities can find understanding and compassion by others that are facing similar situations to themselves. It is hard enough to parent a child with a disability in the […]

It could be worse.

Four words most parents of children with disabilities get fed up of hearing. With every right, too. ‘It could be worse’ Who decides for us what is enough, what we need and what we should be grateful for? I only had to prove in the past 7 years, repeating myself over and over again, that […]