Category: HHE Syndrome

Respite – it’s a funny thing.

Asking for respite.  It’s a funny thing when your respite circumstances are those concerning a child with a disability.  You are forced to recognise that despite others telling you “how do you cope with it all, I could never do that”, that in fact it has beat you.  Only a few people will actually see

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Today MikeyD got verified!

Today MikeyD got verified at his Special School! What does that even mean?  For the first few months, MikeyD has undergone assessments at school for his cognitive abilities as well as physical abilities. All kids that enter the school need to be verified for ID (intellectual disability).  As MikeyD’s physical disability goes hand in hand

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