About Me

Who am I?

I’m Kelly and I started this blog in 2016 to put into words the whirlwind we have experienced since receiving a rare diagnosis in 2012,  for our young son Mikey ‘Danger’ – HHE Syndrome, Hemiconvulsion Hemiplegia Epilepsy Syndrome.

Let’s celebrate life, in all it’s glory – including the great times and the shit-storms.  Enjoy the roller coaster ride with us!