They day we divorced from epilepsy

The day of the divorce was a beautiful day in Brisbane.  The sky was blue and cloudless. The sun was shining bright and the city had a slight buzz as it was beginning to wake up to start its busy day.

As we walked across to the hospital, we had a feeling of anticipation, for what we had been waiting for, for so long, was finally here.  The day we divorced ourselves from epilepsy and the day he was to have his life changing surgery.

We donned ourselves in white gowns, with our hair pieces at the ready.  The surgeon came in to tell us he was about to change our boy’s life forever and assured us the greatest result would be the one he was working towards.  However, like everything in life, there are no guarantees.

As we waited for hours, while our son underwent his brain surgery, we wondered what outcome we could dare to imagine would await him.

Would he be walking within weeks, talking and would there be a slow but progressive road to recovery?

The days were slow as we came to realise that there was a bit of getting used to this life without the intense epilepsy we had experienced previously.  And just like any breakdown of a relationship, we had to adjust to this new way of life.

He woke up in ICU – talking – he said ‘mum, dad, car’ – he was not happy sir to be in the place where he was. We were so freaking happy, our little boy woke up TALKING!!

He hasn’t stopped talking since, new words each and every day – the latest – over 12 months since surgery – being “No Worries”.

He was walking within a week, we just put some chips on the other side of the room to entice him (it worked!)

We haven’t had a completely smooth break-up (does anyone!), and epilepsy has resurfaced on the ‘good side of the brain’, however, it’s just there in the background reminding us that it’s still apart of our life and to accept it, because the worst IS over.    The damage from the condition has been done and IS over.

Now we learn how to life with it.  We take his lead of the recovery which has seen him go from strength to strength, despite epilepsy still resurfacing.

For the best part – we did divorce from epilepsy on that day – the anxiety, the insanely high dose of medications – are all a thing of the past.  The epilepsy we have now, seems to be managable with meds and although like an old constant reminder, that whether we like it or not, is a part of his life, and ours.

 

 

 

 

 

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