Our son Mikey ‘Danger’ lives with HHE Syndrome – Hemiconvulsion Hemiplegia Epilepsy Syndrome.


In July 2017, Mikey ‘Danger’ underwent brain surgery to help with the intractable seizures that were continuing to damage his developing brain.  He had a functional hemispherectomy, whereby his left hemisphere was disconnected and now no longer communicates with the right hemisphere (and the rest of his body).

He continues to amaze us with his fighting spirit and sheer resilience.