Our young son Mikey ‘Danger’ lives with HHE Syndrome –
Hemiconvulsion Hemiplegia Epilepsy Syndrome.
We have researched, read and researched some more(!) over the years about this rare epilepsy syndrome.
We started this blog to inform others that hope is not lost!
We have also set up the HHE Syndrome Rare Connect Patient Page here:
RARE CONNECT – HHE SYNDROME
As we are about to face our biggest challenge yet – Hemispherectomy Brain Surgery – we hope you continue the roller-coaster ride with us!